Mafuba, Kay ORCID: https://orcid.org/0000-0002-2184-9623, Forster, Marc ORCID: https://orcid.org/0000-0002-5942-3169, Chapman, Hazel, Kiernan, Joann, Kupara, Dorothy ORCID: https://orcid.org/0009-0000-3583-269X, Chester, Rebecca and Kudita, Chiedza (2021) Understanding the contribution of intellectual disability nurses: Scoping research Volume 1 of 3: Scoping literature review report. Project Report. Unpublished, London, UK. (Unpublished)

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Abstract

Introduction
This scoping review of literature report is the first volume of a 3-volume project report. The RCN Foundation commissioned the University of West London and their collaborators to undertake scoping research on understanding the contribution of nurses to improving the health and wellbeing of children, adults and older people with intellectual disabilities, now
and for the future. The overall aim of the research is to identify nursing-led and / or nursing centred interventions that are in place to address the challenging and changing needs of people with intellectual disabilities. The
research sought to identify interventions, that can be implemented by nurses working in multi-disciplinary teams. The research identifies areas of good care delivery, innovative practices, and possible gaps in the provision of care for individuals with intellectual disabilities.

Objective
The objective of this review is to summarise evidence on the contribution of intellectual disability (ID) nurses to improving the health and well-being of children, adults and older people with intellectual disabilities, now and for the future.

Methods
We used the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (for Scoping Reviews) (PRISMA-ScR) process and Joanna Briggs Institute (JBI) guidance to select the literature for review and to present the literature review report (Trico et al., 2018; Peters et al., 2017). A mixed
methods approach to the review and synthesis was used due to the heterogeneous nature of the evidence. JBI tools were used to rate studies for quality. Thematic synthesis was used to generate analytical themes.We searched the Joanna Briggs Institute (JBI) Reports, Medline, Embase,PsycINFO, CINAHL, Academic Search Elite, ProQuest Dissertations and Theses (Global) also known as Index to Theses, ETHOS, UK Government
publications, and professional organisations’ publications.

Results
We retrieved 121 publications. Of these we excluded 35 after initial appraisal. We evaluated 86 publications and excluded 33 after appraisal and we included 53 publications in this review. We identified a wide range of interventions (154) undertaken by intellectual disability nurses in a variety of settings across the lifespan. We categorised the intellectual
disability nursing interventions into three themes; effectuating nursing procedures, enhancing impact of services, and enhancing quality of life. The majority of publications reported cross-sectional studies (77%), 6% of publications were literature reviews, and 17% were opinion papers. Only
two of the primary studies investigated the effectiveness of intellectual disability nurse interventions. The majority of the publications focused on interventions related to adults (31). Not all publications focussed on a particular age group. One publication referred to maternity, five focussed on interventions relevant to children, ten identified interventions relevant to all age groups, five focussed on older adults, five focussed on end-of-life interventions and one publication was not clear.

Conclusions
We identified 154 interventions undertaken by intellectual disability nurses in a variety of settings. We categorised the interventions into three themes; effectuating nursing procedures (52 interventions), enhancing impact of
services (73 interventions), and enhancing quality of life (41 interventions). Publications identifying the interventions undertaken by intellectual disability nurses in relation to maternity, children, older adults and end of life care were limited. Publications did not demonstrate the impact and
effectiveness of interventions. This advocates for high quality research being essential in determining the impact and effectiveness of intellectual disability nursing interventions across the lifespan. We recommend that a searchable online compendium of intellectual disability nurse interventions
be established and regularly reviewed.

Item Type:	Report (Project Report)
Subjects:	Medicine and health Medicine and health > Nursing
Depositing User:	Kay Mafuba
Date Deposited:	11 Dec 2023 15:13
Last Modified:	04 Nov 2024 12:30
URI:	https://repository.uwl.ac.uk/id/eprint/10576

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