Dementia and Imagination: a mixed-methods protocol for arts and science research

Windle, Gill, Newman, Andrew, Burholt, Vanessa, Woods, Bob, O'Brien, Dave, Baber, Michael, Hounsome, Barry, Parkinson, Clive and Tischler, Victoria (2016) Dementia and Imagination: a mixed-methods protocol for arts and science research. BMJ Open, 6. ISSN 2044-6055

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Abstract

Introduction: Dementia and Imagination is a multidisciplinary research collaboration bringing together arts and science to address current evidence limitations around the benefits of visual art activities in dementia care. The research questions ask: Can art improve quality of life and well-being? If it does make a difference, how does it do this—and why? Does it have wider social and community benefits?

Methods and analysis: This mixed-methods study recruits participants from residential care homes, National Health Service (NHS) wards and communities in England and Wales. A visual art intervention is developed and delivered as 1×2-hour weekly group session for 3 months in care and community settings to N=100 people living with dementia. Quantitative and qualitative data are collected at 3 time points to examine the impact on their quality of life, and the perceptions of those who care for them (N=100 family and professional carers). Repeated-measures systematic observations of well-being are obtained during the intervention (intervention vs control condition). The health economics component conducts a social return on investment evaluation of the intervention. Qualitative data are collected at 3 time points (n=35 carers/staff and n=35 people living with dementia) to explore changes in social connectedness. Self-reported outcomes of the intervention delivery are obtained (n=100). Focus groups with intervention participants (n=40) explore perceptions of impact. Social network analysis of quantitative and qualitative data from arts and healthcare professionals (N=100) examines changes in perceptions and practice.

Ethics and dissemination: The study is approved by North Wales Research Ethics Committee—West. A range of activities will share the research findings, including international and national academic conferences, quarterly newsletters and the project website. Public engagement projects will target a broad range of stakeholders. Policy and practice summaries will be developed. The visual art intervention protocol will be developed as a freely available practitioners guide.

Item Type: Article
Additional Information: This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http://creativecommons.org/licenses/by/4.0/
Subjects: Medicine and health > Clinical medicine > Dementia
Arts
Medicine and health > Clinical medicine
Medicine and health
Depositing User: Victoria Tischler
Date Deposited: 09 May 2017 13:15
Last Modified: 09 May 2017 13:21
URI: http://repository.uwl.ac.uk/id/eprint/3314

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