Griffiths, Sarah, Spencer, Emily, Flanagan, Katie, O'Keeffe, Aidan, Hunter, Rachael, Wiegand, Martin, D'Andrea, Federica ORCID: https://orcid.org/0000-0002-1643-6162, Benjamin, Lewis, Poole, Marie, Hagan, Alexander James, Brar, M, Wilcock, Jane, Walters, Kate R, Robinson, Louise and Rait, Greta (2024) Evaluating a model of best practice in primary care led post-diagnostic dementia care: feasibility and acceptability findings from the PriDem study. BMJ Open.

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Abstract

Objectives: To evaluate the feasibility and acceptability
of a primary care-based intervention for improving post-diagnostic dementia care and support (PriDem), and
implementation study procedures.

Design: A non-randomised, mixed methods, feasibility
study.

Setting: Seven general practices from four primary
care networks (PCNs) in the Northeast and Southeast of
England.

Participants: We aimed to recruit 80 people with
dementia (PWD) and 66 carers.

Intervention: Clinical Dementia Leads delivered a
12-month intervention in participating PCNs, to develop
care systems, build staff capacity and capability, and
deliver tailored care and support to PWD and carers.

Outcomes: Recruitment and retention rates were
measured. A mixed methods process evaluation evaluated
feasibility and acceptability of the intervention and study
procedures. Using electronic care records, researchers
extracted service use data and undertook a dementia care
plan audit, preintervention and postintervention, assessing
feasibility of measuring the primary implementation
outcome: adoption of personalised care planning by
participating general practices. Participants completed
quality of life, and service use measures at baseline, 4 and
9 months.

Results: 60 PWD (75% of recruitment target) and 51
carers (77% of recruitment target) were recruited from
seven general practices across four PCNs. Retention rate
at 9 months was 70.0% of PWD and 76.5% of carers.
The recruitment approach showed potential for including
under-represented groups within dementia. Despite
implementation challenges, the intervention was feasible
and acceptable, and showed early signs of sustainability.
Study procedures were feasible and accessible, although
researcher capacity was crucial. Participants needed time
and support to engage with the study. Care plan audit
procedures were feasible and acceptable.

Item Type:	Article
Identifier:	10.1136/bmjopen-2023-083175
Subjects:	Medicine and health > Clinical medicine > Dementia
Depositing User:	Federica D'Andrea
Date Deposited:	14 Aug 2024 13:14
Last Modified:	28 Sep 2024 15:07
URI:	https://repository.uwl.ac.uk/id/eprint/12303

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