Evaluating an interactive tool that reasons about quality of life to support life planning by older people

Maiden, Neil, Hide, Sophie, Lockerbie, James, Stumpf, Simone, Hoe, Juanita ORCID: https://orcid.org/0000-0003-4647-8950 and Hirani, Shashi (2024) Evaluating an interactive tool that reasons about quality of life to support life planning by older people. Digital Health.

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Abstract

Objectives: In response to the lack of digital support for older people to plan their lives for quality of life, research was undertaken to codesign then evaluate a new digital tool that combined interactive guidance for life planning with a computerised model of quality of life. Method: First, a workshop-based process for co-designing the SCAMPI tool with older people is reported. A first version of this tool was then evaluated over eight consecutive weeks by nine older people living in their own homes. Four of these people were living with Parkinson’s disease, one with early-stage dementia, and four without any diagnosed chronic condition. Regular semi-structured interviews were undertaken with each individual older person and where wanted their life partner. A more in-depth exit interview was conducted at the end of the period of tool use. Themes arising from analyses of content from these interviews was combined with first-hand data collected from the tool’s use to develop a description of how each older people used the tool over the eight weeks. Results: The findings provided first evidence that the co-designed tool, and in particular the computerised model, could offer some value to the older people. Although some struggled to use the tool as it was designed, which led to limited uptake of the tool’s suggestions, the older people reported factoring these suggestions into their longer-term planning, as health and/or circumstances might change.
Conclusions: The paper contributes to the evolving discussion about how to deploy such digital technologies to support quality of life more effectively.

Item Type: Article
Identifier: doi.org/10.1177/205520762412556
Keywords: Older people, dementia, Parkinson’s disease, quality of life, life planning, digital tools, summative evaluation
Subjects: Medicine and health
Depositing User: Juanita Hoe
Date Deposited: 10 Jun 2024 08:52
Last Modified: 04 Nov 2024 11:21
URI: https://repository.uwl.ac.uk/id/eprint/11940

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