Mafuba, Kay ORCID: https://orcid.org/0000-0002-2184-9623, Chapman, Hazel, Kiernan, Joann, Kupara, Dorothy, Chester, Rebecca and Kudita, Chiedza (2021) Understanding the contribution of intellectual disability nurses: Scoping research Volume 2 of 3: Scoping survey research report. Project Report. Unpublished, London, UK. (Unpublished)

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Abstract

Introduction
This scoping research identifies nursing-led and or nursing centred
interventions that are in place to address the changing needs of people
with intellectual disabilities (ID).

Aims
The aim of the research is to identify nursing-led and / or nursing centred
interventions that are in place to address the challenging and changing
needs of people with ID. The research identifies interventions, that can be
implemented by nurses working in multi-disciplinary teams. The research
also identifies areas of good care delivery, innovative practices, and
possible gaps in the provision of care for individuals with intellectual
disabilities.

Methods
We undertook an online survey to collect quantitative and qualitative
data. We used voluntary response sampling to collect data from 230
participants from 7 countries. Participants were primarily registered
intellectual disabilities nurses working with people with ID. We used
thematic, and content analyses to analyse qualitative data. We undertook
descriptive and inferential statistical analyses of quantitative data,
specifically we undertook Pearson correlations and Pearson Chi-square
analyses.

Results
We identified 878 interventions from 7 countries. These interventions
were undertaken in a wide range of settings and across the lifespan
(maternity (4), children (156), adults (384), older adults (129), all age
groups (393) and end of life (19). We categorised the interventions into
five themes; effectuating nursing procedures, enhancing impact of ID
services, enhancing impact of mainstream services, enhancing quality of
life, and enhancing ID nursing practice. We identified several case studies
that demonstrate the positive impact of ID nursing interventions.

Conclusions
ID nurses implement a wide range of emerging interventions working in
multi-disciplinary teams. They practice in a wide range of settings in the
UK and other countries. More work is needed in order to better
understand the reasons for the limited involvement of ID nurses with
pregnant women with IDs and in end-of-life care. The variation in
understanding the interventions undertaken by ID nurses between
countries need to be further investigated.

Item Type:	Report (Project Report)
Subjects:	Medicine and health Medicine and health > Nursing
Depositing User:	Kay Mafuba
Date Deposited:	11 Dec 2023 15:17
Last Modified:	11 Dec 2023 15:17
URI:	https://repository.uwl.ac.uk/id/eprint/10577

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