International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e‐Delphi approach

O'Malley, Mary ORCID: https://orcid.org/0000-0003-3636-6197, Parkes, Jacqueline, Stamou, Vasileios, LaFontaine, Jenny, Oyebode, Jan and Carter, Janet (2020) International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e‐Delphi approach. International Journal of Geriatric Psychiatry. ISSN 0885-6230

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Abstract

Objective

To develop guidance for clinicians about essential elements that can support clinical decision‐making in the diagnostic workup of young onset dementia.

Methods/design

Three iterations of a modified e‐Delphi consensus survey comprising 23 international expert clinicians specialising in diagnosis of young onset dementia.

Outcome measures

A priori consensus was pre‐defined as 80% of experts ranking statements in the upper threshold on a seven‐point Likert scale that ranged from “not important at all” to “absolutely essential” to diagnosis.

Results

80% consensus was reached on 48 statements that were rated as “absolutely essential” or “very important” to a comprehensive assessment of dementia in a younger adult. In order to inform a subsequent audit of clinical records in which compliance with these statements was assessed, the statements were divided into a Minimum Standard, (consisting of the 15 statements voted by all experts as being “absolutely essential” or “very important”) and a Gold Standard where 48 statements were voted by 80% of the experts as being “absolutely essential” or “very important”. The experts’ response rate across the three rounds was 91.3%.

Conclusion

A Minimum Standard and Gold Standard have been created for the diagnostic workup of young onset dementia. The standards provide a clinically useful tool for decision‐making, particularly for generalists and those with less experience in the field. The standards will be used to inform a UK case note audit of recently diagnosed patients with young onset dementia.

Item Type: Article
Additional Information: This work was supported by the Alzheimer's Society grant number 278 AS-PG-15b-034.
Uncontrolled Keywords: Delphi study, diagnosis, expert consensus, quality indicators, standards, young onset dementia
Subjects: Medicine and health > Clinical medicine > Dementia
Medicine and health
Related URLs:
Depositing User: Jisc Router
Date Deposited: 03 Sep 2020 17:34
Last Modified: 03 Sep 2020 17:34
URI: http://repository.uwl.ac.uk/id/eprint/7286

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